Medical History:- (updated
on 4 Feb 2012)
Feb 3 – Temodar
Feb 2 – ProtonCure
Chemotherapy
(Avatin) + novocure + ProtonCure (radiation therapy + Temodar – 4-5 week)
Jan
25 – novocure started
Jan 23: I went to the Proton Therapy Center and
completed the CT simulation, it will take about 10-12 business days for the
planning team to complete my treatment plan.
A member from the team will contact me when the plan is ready and will
schedule my treatment sessions. At this
point they anticipate it to start the week of February 1st. The proton therapy has been approved by my
insurance.
I
understand that you will be scheduling the times for my medications once I start
the Proton Therapy.
Will
you email me the medication name and the times I should take those
medications. I will be free tomorrow if
you want to contact me and I will try to have my friend Elsie be part of the
conversation with you. On Wednesday, Thursday, Friday, I am booked with
appointments, but I will be free on Saturday again.
Currently,
this is my medication schedule
6:30am DEXAMETHASONE
6:00
am FAMOTIDINE
7:00am
Keppra
6:30pm DEXAMETHASONE
7:00pm
Keppra
SULFAMETH/TMP DS TAB –
ONDANSETRON
TEMODAR
These 3 medications will be started during proton
therapy. How should I schedule these
medications with the above medications.
Jan
19: Saw Andria Baumgartner-
Speech Language Pathologist (CDH): Recommends skill therapy services- to focus
on fill in sentences for word recall, and increase expressive language skill.
She will fax you the notes from my visit. – Praxis tasks, buttoning, putting on
watches, and fine motor skills, and less word finding abilities. Activity work:
automatics, numbers, days, months, singing.
Goal: progressing and improvement and phoneme
cues, less dysfluency.
Plan: focus on automatics, fill in sentences for
work recall, breath support to show rate, and increase expressive language
skills.
Jan
18: Yesterday and today
morning have wheezing & difficulty breathing... I have seizure 17 Jan'11 -
last 5 min. I take Lorazepam 1 mg. Yesterday and today i try buttoning, putting
on watches, week right.
Jan
16: Met with Dr. Sweeney at
CDH ProtonCure. Mock session and marking the site for radiation therapy on Mon
23’ Jan for ProCure Proton Therapy. They are trying to get approval from my
insurance for the proton therapy. The financial advisor stated that all
information has been submitted to my insurance today (Jan 19th - Jocelin – 630-821-6384)
and it should take 1-2 weeks before I hear anything from them. My insurance is
out of network and they are trying to get approval for in network and that is
why it is taking time for approval.
Jan
18: I met Dr. Herbert
Engelhard, University of Illinois Hospital in Chicago and have been approved
trial case. NovoCure "Novo TTF" (TTF stands for "tumor-treating
fields"). NovoCure training session will be on Thursday January 26th. An
MRI will be done for the trial every 2 month at UIC.
Jan
12: Dr. Ayers office called
and I have set up an appointment to see him on Friday January 27th @ CDH. I
will have my next Avastin treatment at UIC on January 25th 2011. After I see
Dr. Ayers on the 27th Jay 2011, they will set up my Avastin treatment at CDH
Cancer Center.
3 Jan 2012 – subdural collection with reduced contrast enhancement
with focal areas of cavitations that also appear to decreased in size. These
effects may be due to the Avastin. Edema surrounding the surgical bed shows
interval worsening with increasing mass effect an adjacent structures. Concern
in raised that this increased edema may be producing the mass effect causing
pain on the adjacent dura as well as well as the worsening of the speech
difficulties…
MRI Report: 01/03/2012 , 12/01/2011 and dating back to
03/01/2008 ...
Multiple resections 19 Mar 2008, 19 Aug 2010 … Left front
parietal craniotomy
Glioblastoma 3rd and Astrocytoma 1st / 2nd Anaplastic
(Malignant, High Grade, III)
Now 3 cycles Avastin (8 Dec 2011)
Oct
2011: Start TEMODAR – 380 mg (5 days) - 3 months …
Aug 2011 : There was no recurrence of tumor for
these 2.5 years. Mar 2nd week’s MRI was clean and Jul 1st week’s MRI shows
recurrence. I am undergoing
awake-craniotomy with speech mapping to remove tumor and cyst that formed in my
left side of brain. Surgery is scheduled on 19th Aug 2011 at Provena Saint
Joseph Medical Center - Joliet.
On March 1st
2008 I was taken to UIC Medical
Center , Chicago with some seizure activity and syncopal episode and aphasia.
MRI shows roughly 2-3 cm mass in left front temporal /parietal lobe. I underwent surgical awake resection
craniotomy of the lesion on March 19th
2008. Pathology report showed grade III anaplastic asterocytoma (with a ki67 or
5-6%).
I took 4 cycles of 5 day radiation in May 2008 and
started Temodar (www.temodar.com) on Jun 2008 with 5 day/month with 180mg for 6 months and then
taper off to 140mg and then to 100mg and stopped the medication by May 2009. I
was put on Lyrica 75 mg night for 2 years and now I am off of this. I am taking
Keppra (www.keppraxr.com) 1750 BID for controlling my seizure due to
resection. Doctors are planning to taper off Keppra starting from March 2011
onwards; But I have to keep a minimum level of Keppra for a long time.
The latest MRI report taken on 10 Nov 2010 says that
there is no evidence of recurrence, status post left frontopariental craintomy
with underlying encephalomalacic changes, cystic change and gliosis without
change from previous studies (6 MRI’s compared starting from 29 May 2009). The
blood volume on the MRI perfusion study does not demonstrate any increased
vascularity that could be associated with tumor recurrence. Doctors will continue couple of MRI’s this
year and will stop monitoring my case.
I went to Speech Therapy for 3 months after my surgery
and Occupational therapy for 2 months ; Experiencing speech break if I am
nervous or tired or when trying to say a new word that I did not say in these 3
years. I experience occasional numbness in the 1st and 2nd
finger of my right hand if I did not get enough rest. Also a chance of getting
partial seizure if I am missing a dose of my seizure medication; And I used to
carry seizure breakthrough medication always with me. Health wise I am doing
better now; doing regular walking and taking healthy diet with lots of
antioxidants in my diet. I started by driving by March 2009 and enjoying the
climate at Chicago.
Dec 2011 - Diagnosis:
-
To:
"SOMA SINHA ROY" <somasr5@hotmail.com>
Hello,
Just wanted to give you some info regarding another neurooncologist, as you
have requested, especially since Dr. Villano is leaving UIC.
I would highly recommend Dr. Nicholas Vick and his group, including Dr. Ryan
Merrell and Dr. Nina Paleologos. Their office contact info is 847-570-1808
(phone), and 847-733-5137
(fax). They are located in Evanston, at NorthShore Hospital . Hope this helps.
Best,
Soma Sinha Roy, MD
Dear
Jean,
The nurse is on vacation this week. Dr. Engelhard will call you regarding your
nausea medication; he also agrees that you should go to the ER. Please call
your uncle regarding transport.
Best,
Dr. Soma
----
Jean, I would like for you to come in and obtain an MRI of the
brain. It is best if you got it soon and through the ER (and they can take care
of the Vicodin Rx). Can you do this soon? I am okay with Depakote.
John L. Villano, M.D., Ph.D
Director of Medical Neuro-Oncology,
From: Jean Mathew
[mailto:jean.mathew@gmail.com]
Sent: Sunday, January 01, 2012 11:49 AM
To: John L Villano Cc: vmaynal@uic.edu; 'Morris, Kelly (PSJMC)';
jgolick@uic.edu
Subject: Regarding headaches and update...
Hi
Dr. Villano,
I
have had 2 days where I have had severe headache at my left frontal forehead
area with nausea. The headaches disappear when I take the Vicodin 500mg. On
1/30/11 at night I took 1 vicodin and went to sleep and by morning it was
better. On 1/31/11 night, I took another Vicodin and the headache got better.
Again this morning I had another headache and took another vicodin and I feel better now. Last
night I had muscle cramp on my right last 3 fingers and I took 0.5mg of Ativan
for that. I also has had itching on my face and head and I have been taking
loratadine tablet for the itching. I just want to know if it is alright for me
to continue taking the Vicodin for my headaches and if so, I need another
prescription for the Vicodin?
I
just wanted to update you on my medication changes. My neuro doctor Roy
Sucholeiki at Neurosciences Institute at CDH increased my Keppra dose to 1000mg
tablet 2 times daily and stopped my Lyrica tablets. On 12/22/11, I had an
appointment with Dr. Englehard and he gave me a prescription for Depakote ER
500mg 1 tablet 2 times daily, but he only wants me to take it if you approve it
based on the condition of my liver. ( In 2008, I remember you had put me on
Depakote and then stopped it because of something with my liver condition. At
that time, you changed my medication to Keppra.) Please let me know what I
should do regarding the Depakote.
I
had 2 cycles of Avastin so far, and I think I will need to have a MRI after 2
more cycles of the Avastin. There has been some delay with the treatments (TTF)
at Novocure and I think my MRI's will be delayed also. Can you give me a order
for an MRI so I can do it after 2 more cycle of the Avastin? If I wait for
Novocure, my MRI will be delayed.
Can
you updated me on your new email and phone number?
Thanks,Jean
Sent:
Tuesday, January 03, 2012 9:22 PM
To:
Jean Mathew; nbtorres@uic.edu; Watson, Karriem
Subject:
RE: Phone : 630 363 4743
Hi
Jean,
Yes,
I have heard from Dr. E. that you are a good candidate for the NovoTTF
commercial use. Therefore, Dr. E needs to see you again at his clinic.
Nancy,
please
schedule an appointment w/Dr. E for pt, Jean Mathew, per Dr. Engelhard's
request.
Thank
you in advance,
Marko
