God + Human + Brain + My Dreams

Dreams 48hr – 20Fri (00:00hr) – 22Sun (06:45hr)

[God + Human + Brain + My Dreams ] (ask Amma - mom)

2012 Jan……..01-03..04-14…15-19…20..23…

MY HEADACHE ,  PAIN AND BRAIN BLEED… IS THAT REAL !

CC:  Family + My Friend (Alex Amma Anns Anuj Biji Binta Elsie Georgekutty Girish Jaico Jeethu Jinu Georg Jiss Kanu Mathai Acha Matthew Merin Neema Nitesh Pius

Reno Roopa Sarah Sheby Sheeba Tennyson RevThomas Lynda Nancy Paul Preetha RevJoymathew Shyam Soju Thomasvp Eipe Viju Pramod)

CC:  Dr. – John, Soma, Andria …

My BLEED’s Dreams  : Praxis tasks, fine motor skills, and less word finding abilities... Automatics, numbers, days, months, singing, dysfluency and expressive language skills ... well as well as the worsening of the speech difficulties…

Sort , Common missing , Dizziness and  

Dreams + Real

Aphasia Loss of language

Apraxia Lost of praxis motor planning

Antonia Loss of names

Coediting automatics opposites sequence…123/mon-tue-wed/jan-feb-mar etc..

Nothing Will Be Impossible (Luke 1:37)

Prayer + Med + [Book: Read : (Mom) ]
(Book: Gift, Merin) God's Healing Words by Siloam, Siloam Authors
(CD: Gift, Nancy) MARK SCHULTZ LAUNCHES “THE RENAISSANCE TOUR” WITH JASON GRAY AND DAVID KLINKENBERG ON MARCH 10TH

o    Start 10:30pm 23/jan/2012, now

o    now 11:20

o    now 11:45 edit - start type…

o    now 24/jan/2012 02:30…

o    End

Sun 1/1/2012 02:50 AM… events ….

Jan 1: ER CDH MRI (Called)

ü  1 Jan 0250 Mail

o    Girsh

o    John L Villano

o    Marko

o    Annie

o    Acha 640p

o    Jeethu 7p

ü  Call

o    Nitesh

ü   

ü  1 Jan : PAIN – 3 pill day Vicodin …

ü  2 Jan : PAIN – 1 pill day Vicodin …

ü   

ü   

Jan 3: ER UIC MRI

ü  3Jan 0700 Mail

ü  No email…

ü  Call

o    Shyam

o    Nitesh

ü  3 Jan : PAIN – 3-4 pill days Vicodin …

subdural collection with reduced contrast enhancement with focal areas of cavitations that also appear to decreased in size. These effects may be due to the Avastin. Edema surrounding the surgical bed shows interval worsening with increasing mass effect an adjacent structures. Concern in raised that this increased edema may be producing the mass effect causing pain on the adjacent dura as well as well as the worsening of the speech difficulties…

 

MRI Report: 01/03/2012 , 12/01/2011 and dating back to 03/01/2008 ...

Multiple resections 19 Mar 2008, 19 Aug 2010 … Left front parietal craniotomy

Glioblastoma 3rd and Astrocytoma 1st / 2nd Anaplastic (Malignant, High Grade, III)

Now 3 cycles Avastin (8 Dec 2011)

Jan 4-14

ü  8Jan 0800 Mail

o    ProCure (CDH Proton)

o    Inna (NorthShore)

o    Jiss 1/11

o    Anns

ü  4 Jan : PAIN – 3-4 pill days Vicodin …

ü  5 Jan : PAIN – 3-4 pill days Vicodin …

ü  Call

o    Shyam

o    Elsie

ü   

ü  6 Jan : PAIN – 3-4 pill days Vicodin …

ü  7 Jan : NO PAIN

ü  8 Jan : PAIN – 4 pill days Vicodin …

ü  9 Jan : PAIN – 2 pill days Vicodin …

ü  Call

o    Shyam

o    Elsie

ü  10 Jan : PAIN – 1 pill days Vicodin …

ü  11 Jan : PAIN – 2 pill days Vicodin …

ü  Call

o    Shyam

o    Elsie

ü  12 Jan : PAIN – 4 pill days Vicodin …

Dr. Ayers office called and I have set up an appointment to see him on Friday January 27th @ CDH. I will have my next Avastin treatment at UIC on January 25th 2011. After I see Dr. Ayers on the 27th Jay 2011, they will set up my Avastin treatment at CDH Cancer Center.

ü  13 Jan : PAIN – 2 pill days Vicodin …

ü  13Jan : DEXAMETHASONE – 13Jan 6pm …

ü  14 Jan : NO PAIN

ü   

Jan 15-19

ü  15Jan 0250 Mail

o    Shyam

o    11am - Medical Details 2012 -16Jan – Inna, John, Soma

o     

o    16Jan 2p, - Acha – George & Me (mail)

o    18Jan Jeby – car

ü  Call

o    Shyam

o    George

o    Nitesh

ü   

ü  15Jan NO PAIN

ü  16Jan NO PAIN

Met with Dr. Sweeney at CDH ProtonCure. Mock session and marking the site for radiation therapy on Mon 23’ Jan for ProCure Proton Therapy. They are trying to get approval from my insurance for the proton therapy. The financial advisor stated that all information has been submitted to my insurance today (Jan 19th - Jocelin – 630-821-6384) and it should take 1-2 weeks before I hear anything from them. My insurance is out of network and they are trying to get approval for in network and that is why it is taking time for approval.

ü  Call

o    Shyam

o    Elsie

ü  17Jan NO PAIN, SEIZURES 2am, 3-5min, 1.0mg , ASTHMA - 6-5 puff

ü  Call

o    Shyam

o    Elsie

ü  18Jan NO PAIN, SEIZURES 2am, 3-5min, 1.0mg , ASTHMA - 4-5 puff

Yesterday and today morning have wheezing & difficulty breathing... I have seizure 17 Jan'11 - last 5 min. I take Lorazepam 1 mg. Yesterday and today i try buttoning, putting on watches, week right.

I met Dr. Herbert Engelhard, University of Illinois Hospital in Chicago and have been approved trial case. NovoCure "Novo TTF" (TTF stands for "tumor-treating fields"). NovoCure training session will be on Thursday January 26th. An MRI will be done for the trial every 2 month at UIC.

ü  19Jan NO PAIN, SEIZURES 2am, 3-5min, 0.5mg, ASTHMA - 2 puff…

 

Saw Andria Baumgartner- Speech Language Pathologist (CDH): Recommends skill therapy services- to focus on fill in sentences for word recall, and increase expressive language skill. She will fax you the notes from my visit. – Praxis tasks, buttoning, putting on watches, and fine motor skills, and less word finding abilities. Activity work: automatics, numbers, days, months, singing.

Goal: progressing and improvement and phoneme cues, less dysfluency.

Plan: focus on automatics, fill in sentences for work recall, breath support to show rate, and increase expressive language skills.

Jan 20 : Dreams? 11pm to 4am morning? Musical like ... Renaissance! Awake. or read meditation ... or "God healing words spokes through His word".

ü  Mail

o     Shyam – CD and Med Rec

o    Elsie

ü  Call

o    Shyam

o    George

ü  20Jan NO PAIN , NO SEIZURES,  NO ASTHMA

----

(Friend CC)

I SEND that email…

My Friends Mail Attn…

----

Jan 21-22 ...

ü  Mail

o    Shyam

o    Nitesh

o    Elsie

ü  Call

o    Shyam

o    George

o    Nitesh

ü   

ü  21Jan NO PAIN , NO SEIZURES,  NO ASTHMA

ü  22Jan NO PAIN , NO SEIZURES,  NO ASTHMA

ü  8 to 1 pm : PRAYER, Read, Music  

ü  11:45 amma…

ü  11:30 ... sleepless 

ü  1am -5am: PRAYER, Read, Music  

ü  10:10 pm u+

ü   

NO PAIN, NO SEIZURES, NO ASTHMA - HAPPY ... 2HR NAP [1-3PM] SOUND :-)

22Jan:

ü  Mail

o     Elsie

o     

ü  Call

o    Shyam

o    George

o    Nitesh

ü   

ü  22Jan NO PAIN , NO SEIZURES,  NO ASTHMA

ü  300 pm :-) Sound nap

ü  800 pm … Music  

ü   

ü  200 am :) PRAYER, Read, Music  

ü  3:00 u+ ... Amma...

ü  2:00 Amma ... 

ü  1:10 u+

ü  Nap

ü  06:45 – Photo – Cat

ü  06:50 - Lynda Blue , mail – I call –

ü  07:20 - Church

Luke 1:37 ... I fell strong :) ... God's Healing Words Spoken Through His Word ... Amen!

God's Healing Words Spoken Through His Word ... Amen!

23Jan: Green Flag :) just came home ... Insurance say "OK" ... Mock session and marking done.

ü  Mail

o     Shyam

o     

ü  Call

o    Shyam

o     

ü   

ü  23Jan NO PAIN , NO SEIZURES,  NO ASTHMA

ü   

ü  3:00 u+ ... Amma...

ü  2:00 Amma ... 

ü  1:10 u+  

ü   

ü  0800pm: Nap (prayer , Amma+ Uncle + Aunty +ME)

ü  I tired…

ü  1035pm: watch time

 

I went to the Proton Therapy Center and completed the CT simulation, it will take about 10-12 business days for the planning team to complete my treatment plan.  A member from the team will contact me when the plan is ready and will schedule my treatment sessions.  At this point they anticipate it to start the week of February 1^st.  The proton therapy has been approved by my insurance.

 

I understand that you will be scheduling the times for my medications once I start the Proton Therapy. 

Will you email me the medication name and the times I should take those medications.  I will be free tomorrow if you want to contact me and I will try to have my friend Elsie be part of the conversation with you. On Wednesday, Thursday, Friday, I am booked with appointments, but I will be free on Saturday again.

 

Currently, this is my medication schedule

6:30am DEXAMETHASONE

6:00 am FAMOTIDINE

7:00am Keppra

6:30pm DEXAMETHASONE

7:00pm Keppra

SULFAMETH/TMP DS TAB –

ONDANSETRON

TEMODAR

These 3 medications will be started during proton therapy.  How should I schedule these medications with the above medications.

God's way is perfect ...
All the Lord's promises prove true...
He is a shield for all who look to him for protection ... Psalm 18:30

24 TUE DONE – (Free MAN, Luke 1:37 ... I fell strong :) ... God's Healing Words Spoken Through His Word ... Amen!)

-      Jean Mathew